Learning & Resources

Practical learning for families navigating long-term care systems. 

AAA webinars are focused 45–60 minute learning sessions designed for families and caregivers supporting loved ones with developmental disabilities, cognitive disabilities, mental health needs or aging-related care requirements.  These sessions are grounded in:

• Lived experience
• Policy and systems knowledge
• Real-world care navigation

Additional webinars and briefings will be introduced over time.

Understanding the system(s) that support care and community inclusion.  

This section provides plain-language explanations and deeper analysis of the policies, funding structures and oversight mechanisms that directly affect people receiving care and their families that  includes:

• Public explainers on how care systems are structured and funded.
• Advocacy learnings drawn from real-world failures and gaps.
• Resources that help families ask better questions and recognize red flags.

Some materials are offered publicly to support informed advocacy while more in-depth learnings help sustain AAA’s education and reform work.

It is a tool designed for caregivers navigating long-term responsibility advocacy and emotionally demanding systems of care.  When primary caregivers, families, guardians and legal authority in care are faced with harassment and toxicity as they resolve are and support for their loved ones in group homes and special car homes. 

Currently in development.
Launching soon. Stay tuned.

Building knowledge where gaps persists.

AAA publications contribute original research, analysis, and commentary focused on care systems, community inclusion, and quality of life for people with disabilities and aging populations. This work is grounded in lived experience, structured intake data, and critical examination of publicly funded care models.

AAA’s research and publications will draw on confidential intake information shared by families and legal authorities in care with appropriate consent and anonymization,  including, but are not limited to:

• Denial of access to individuals, homes, records, and personal effects.
• Abuse, neglect, and failures in duty of care.
• Health, safety and care record-keeping practices.
• Non-compliance with legal authority, substitute decision-makers, and guardians.
• Cleanliness, environmental safety and standards of care.
• Staffing shortages, staff training, certification and access to qualified personnel
• Alignment (or misalignment) between care assessments and actual service delivery
• Programming related to connection, participation and  inclusion, including:  health,  cost of living,  access to care,  health supports and gaps in financial transparency, non compliance to health decision making, information sharing, and service resolutions.
  

 AAA’s  recognizes the urgent need for improved care and collaboration during key life transitions particularly the transition from education to community life and as individuals with vulnerabilities age while living in the community, supported by families, care partners and service providers.  There is  inadequate public programming with prolonged wait times for assessments as much as access to care services.  It  

  serves operational convenience rather than the people it is mandated to support, devaluing not only human rights, but quality of life.

AAA asserts that publicly funded care and programming must be responsive, tailored, and accountable to the needs of the individual.

 Real change begins with those who live the experience, advocate within it, and work collaboratively with care teams to demand better outcomes. This work exists to document failures, elevate lived realities, and drive systemic change—so that care systems serve people, not bureaucracy.

Listening, documenting, and learning from lived experience.

AAA uses structured intake forms and surveys to better understand the real conditions experienced by individuals and families receiving care.  Tools include:

• A general intake form for individuals and families.
• Optional consent for anonymized use of stories and insights.
• Targeted surveys assessing care quality, access, inclusion and programming gaps.

Aggregated insights help inform:

Advocacy priorities

Public education

Policy engagement

Program development